Declaration of Rights of Individuals with Childhood-Onset Heart Disease

We are working hard at representing our member organizations and individuals through advocacy efforts. Our Declaration of Rights of Individuals with Childhood-Onset Heart Disease was launched in 2020. We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration. To read it please click HERE.

Global ARCH LIVE Webinars

We are running a series of webinars on a wide range of topics to help the CHD/RHD community stay current with with a variety of topics, including Covid-19 and What We Know So Far, Fundraising Strategies in the Time of Pandemic, and Leveraging Social Media for High-Level and Patient Advocacy. We will also be hosting Peer Sharing sessions to give everyone an opportunity to share and learn from each other. To learn more click HERE.