This is a very useful resource on the adult congenital heart disease (CHD) burden, resource needs, and in-country perspective on barriers to long-term care. It was written by Amy Verstappen, Global ARCH President, in 2019 for her Masters of Global Health degree at the Instituto de Salud Global Barcelona. It is a go-to resource for those looking to better understand the long-term needs of CHD patients and their families, and what needs to be done to provide long-term care in high-, middle-, and low-income countries.

Life Beyond Surgery: Addressing the Neglected Issue of Providing Long-Term Congenital Heart Care in Middle-Income Countries