Declaration of Rights of Individuals with Childhood-Onset Heart Disease

We are working hard at representing our member organizations and individuals through advocacy efforts. Our Declaration of Rights of Individuals with Childhood-Onset Heart Disease was launched in 2020. We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration. To read it please click HERE.

To view a Summary of the Declaration click HERE.

Global ARCH LIVE webinar presentation by Global ARCH President Amy Verstappen: CHD/RHD Needs are Human Rights: What Do we Need? How Do We Get There?

Declaration Information and Action Toolkit
This user-friendly document explains what the Declaration of Rights is and how you can use it in your organization. It includes a summary, fact sheet, and social media toolkit to help you reach your target audiences. We hope you find it useful! Please click HERE.

Global ARCH LIVE Webinars

We are running a series of webinars on a wide range of topics to help the CHD/RHD community stay current with with a variety of topics, including Covid-19 and What We Know So Far, Fundraising Strategies in the Time of Pandemic, and Leveraging Social Media for High-Level and Patient Advocacy. We will also be hosting Peer Sharing sessions to give everyone an opportunity to share and learn from each other. To learn more click HERE.