Global ARCH welcomes four new board members!

Global ARCH held its first Annual General Meeting on December 13, 2019 and are delighted to announce the addition of four new board members: Claire Wilby, Flavia Kamalembo Baturine, Dominique Vervoort, and Farhan Ahmad.

Claire Wilby is an energy and infrastructure lawyer, with a focus on Africa and other Emerging Markets. She is also a congenital heart disease patient.

Flavia Kamalembo Baturine has lived with rheumatic heart disease for 8 years, and is a member of the Rheumatic Heart Disease Support group in Uganda, under the Uganda Heart Institute.

Dominique Vervoort is a medical graduate from Belgium with extensive experience in the field of global surgery, enrolled in a Master of Public Health and Master of Business Administration at Johns Hopkins University.

Finally, Farhan Ahmad is a social innovator and philanthropist, and founder and volunteer CEO of Pakistan Children’s Heart Foundation, an NGO focused on building a specialized children’s heart hospital in Lahore, Pakistan.
All have outstanding involvement in CHD/RHD organizations with leadership roles, and will be a fantastic addition to our organization. Welcome Claire, Flavia, Dominique, and Farhan! You can read their full bios HERE.

Global ARCH board members needed

Global ARCH is looking for applicants to serve on our governing board. Board service is open to all committed to our mission to improve worldwide life-long outcomes in childhood-onset heart disease through empowering patient and family organizations, and those directly affected by CHD or RHD are especially encourage to apply. More

Global ARCH sends out inaugural newsletter – WorldBeat. To read it please clickHERE.

RHD Action launches 2019 Small Grants Programme

RHD Action is pleased to launch the first round of our Small Grants Programme for 2019 with this request for proposal. To date, 13 projects in a dozen countries from across the globe have been funded & supported through our RHD Action Small Grants Programme which was launched in 2017. More

‘Listen to my Heart’: a collaborative event with a focus on people living with congenital heart disease

On March 16, 2019, the Children’s Heart Disease Research Unit, in partnership with Brave Little Hearts SA and Heart of Hope, hosted our 2nd patient-focused workshop – ‘Listen to my Heart’ – at the Red Cross War Memorial Children’s Hospital. More

Children, patients, and the young have a voice at the UN meeting on NCDs
“The greater presence of young people and patients is an encouraging signthat the agenda is shifting”, says Bistra Zheleva. “The young people becoming engaged in programmes to counter NCDs are remarkable and inspiring. There is a whole new cadre of young medical and public health professionals who care and want to see a change, and their voices were clear and loud. The representative of NCD Free compellingly called out to UN member governments, “We are here, expecting governments to lead the way. Involve us!” More

Global ARCH board member Hannah Amora speaks at UN meeting on NCD’s – patient and caregiver’s views finally being heard
“When Maven was born in 2011, he was diagnosed with a congenital heart defect. This involved a number of conditions, some of which doctors expected would resolve on their own. But one of those — a pulmonary stenosis — would require surgery when he was older, at an estimated cost of $20,000. That is a significant price tag just about anywhere in the world but a particularly high one for a young, working-class family living in Cebu City, Philippines. More

Global ARCH attends UN General Assembly for Prevention and Control of NCDs
On July 5th, 2018, Global ARCH attended the Interactive Hearing in preparation for the third High-level Meeting of the UN General Assembly on the Prevention and Control of Non-Communicable Diseases (NCDs) as part of the Children’s HeartLink delegation. Global ARCH President Amy Verstappen advocated for the recognition of rheumatic and congenital heart disease as a major cause of NCD mortality and disability worldwide. She joined the American Academy of Pediatrics, the Global Health Council, Partners in Health, and many other stakeholder groups in calling for life-long access to needed medical care for every person affected by NCDs.

Global ARCH invited to speak at the Cochrane Colloquium
Global ARCH has been selected to present at the Cochrane Colloquium, being held in Edinburgh, Scotland September 16th – 18th. Entitled Beyond the RCT: How Global Patient Organizations Build Research Capacity and Impact , the presentation will highlight the ways CHD and RHD advocacy groups in low and middle-income countries support the development of clinical research.   Cochrane is an international nonprofit dedicated to evidence-based medicine that promotes patient and family engagement in research.

Global ARCH – find us on Facebook:

  1. Visit our Facebook page for general information about our organization.
  2. Visit our Facebook group to take part in discussions and to find out what’s happening.
  3. If you are an RHD or CHD organization leader please visit our Facebook Leader’s Forum to join.

Media release RHD/CHD leaders can share with your group
Global ARCH Media Release July 19.18

RHD Action launches 2018 Small Grants Programme